Page Tools:

Brittle Bones, Stout Hearts and Minds: Adults with Osteogenesis Imperfecta

Author(s): Joan Ablon, PhD, Professor Emerita, University of California, San Francisco
Details:
  • ISBN-13: 9780763760052
  • Paperback    256 pages      © 2010
Price: International Sales $54.95 US List
Add to Cart Request a Review Copy

Overview

Brittle Bones, Stout Hearts and Minds is written for patients with Osteogenesis Imperfecta (OI), their families and those who treat them including physicians, nurses, social workers, genetics counselors, and other persons with interests in differing kinds of physical disabilities. The book chronicles life experiences, coping patterns, and strategies for daily living of adults with OI, through personal accounts of medical experiences, education, economics, physical intimacy, dating, marriage, and general lifestyle issues. There are no other comparable books that deal with psychosocial issues of adults with OI.

 

ShowKey Features

  • A perfect reference for affected persons, their families, and the large population of persons with other physical disabilities and differences.
  • Helps those with OI learn what to expect in their lives and how to cope with their condition including medical experiences, education, physical intimacy, dating, marriage, and stigmas. 

Back to top

ShowTable of Contents

  Chapter  I  Introduction
Part  1  Early Life Experiences
  Chapter  II  Birth and Early Social Life
  Chapter  III  Early Medical Experiences
  Chapter  IV  Education
Part  2  Meeting the Challenges
  Chapter  V  Employment and Personal Economics
  Chapter  VI  Dating
  Chapter  VII  Sexual Relations and Physical Intimacy
  Chapter  VIII  Marriage and Long Term Relationships
  Chapter  IX  Stigma
  Chapter  X  Identity Issues
  Chapter  XI  Life in the Fast Lane
  Chapter  XII  Contemporary Health Issues
  Chapter  XIII  Impact of OI in the Life Career
  Chapter  XIV  Personality and Stereotype
  Chapter  XV  Conclusion
Back to top

ShowAbout the Author(s)

Joan Ablon, PhD-Professor Emerita, University of California, San Francisco

Back to top

ShowReviews

  • “Joan Ablon’s remarkable book brings to life fifty-five people with OI who we would otherwise know only from dry medical descriptions, identification of mutations in the genes that contribute to bone, or observations of them working their way through those parts of their lives we share with them. She brings us people in the full bloom of their adult lives, shaped by sometimes rock-hard and isolating experiences. She asks how these experiences shape them- how they integrated these experiences to seek solace, caring environments, romance, jobs, everyday life, and to make a successful adjustment. She has left us with a book filled with wisdom and insight, a reference for years to come, and the impassioned plea to make the world a better place for people with OI and all the rest of us. Not an easy task, but well worth taking on.”

    Peter H. Byers, MD
    Departments of Pathology and Medicine
    University of Washington
    Seattle, WA

Back to top